Vol. 12 No. 1 Spring/Summer 2016 Family Circle El boletín informative A publication for families living in Riverside & San Bernardino Counties with children age 0-36 months who are at risk for or have developmental disabilities. Please visit our website at www.esfrn.org to view past issues of the Family Circle newsletter. What’s Normal about Crying? As hard as it may be to listen to sometimes, crying is something your baby is supposed to do! It is her way of saying, “Something is not right. Care is needed, please!” WHY DO BABIES CRY? Hunger is the most common reason babies cry, but certainly not the only reason. Usually, if a newborn has been fed and burped within the last hour and a half, chances are she needs something else. Maybe she wants to be held, maybe she is cold, or maybe she just needs to be reminded that you are there for her. You may think that as a parent you are somehow supposed to magically know what each cry means. You won’t. No parent does. At least, not at first. As you and your baby get to know each other, you will learn to read her cues and her cries. Child development experts agree: you cannot spoil your newborn by responding to her cries. There may be times when you feel like your new baby is trying to control you with her crying. However, scientists now know that it is not until later in the first year of life when babies learn that they have the power to get you to behave in certain ways. For babies six months or younger, your quick and loving response - as much as food - is a comfort to her if she is upset. HOW MUCH DO BABIES CRY? While all babies cry, the amount depends on the baby. It is common for babies to cry on average for a total of one hour over the course of a day during the first few weeks. This may increase to as much as two hours total a day when the baby is six weeks old. Then, after about eight weeks or so, that amount may go back down to about an hour a day total. If your baby cries a lot more than the average, he could have colic. Of course, five minutes of crying can feel like an hour if you have only had a couple hours of sleep! Use a crying diary to track how much your baby is really crying. It may be less than it seems. Share this info, along with total sleeping and crying amounts with your baby’s health care provider. Charting how much your baby cries can be helpful if you think she may have colic. COMFORTING YOUR BABY There is no one right way to comfort a crying baby. But there are lots of different strategies that work. Consider them all tools in your toolbox. When one does not work, try the next one! Ask your parents or grandparents what soothing techniques they used with you. The same ones may comfort your baby. With time and practice, you will find what works best for you and your baby. Just keep trying! SWADDLING Swaddling is another word for snuggly wrapping your baby – kind of like a burrito! While it may seem strange to us, babies really like being wrapped up so that it’s hard for them to move their arms or legs. When they were in the womb, they did not have much wiggle room. So being swaddled feels like home to them. This is how to swaddle your baby: 1. Spread out a large blanket on a flat surface (blankets that have a little stretch are good for swaddling) 2. Turn down the top corner of the blanket to make a triangle 3. Lay your baby so his head is just above the fold 4. Hold one arm at his side and bring the blanket flap on that side of his body across his chest 5. Tuck the flap behind his back, between his torso and other arm 6. Take the bottom triangle and bring it up to your baby’s chest 7. Pull up the remaining flap snugly across his chest to secure the other arm, and wrap it behind him as far as it will go This article was adapted from the All Babies Cry booklet. To download a free copy of the booklet, including a Crying Diary worksheet, Self-care tips & Colic and How to Cope visit www.allbabiescry.com. 2 Family Circle Spring/Summer 2016 ¿Qué es lo Normal Acerca del Llanto? CONSOLANDO A SU BEBÉ Algunas veces esto es difícil de escuchar, pero el llanto es algo que se supone que tu hijo(a) lo haga! Esta es la forma de decir, “Algo no está correcto. Necesito que me ayudes, por favor!” No hay una forma correcta de consolar a su bebé. Pero hay un sin número de diferentes estrategias que trabajan. Considere todas las opciones que están a su mano, cuando una no trabaja, trate la próxima! Pregúntele a sus padres o abuelos que técnicas ellos usaron para calmar el llanto. Esta misma puede consolar a tu bebé. Con la práctica y el tiempo, usted puede encontrar que trabaja mejor para usted y su bebé. Siga tratando! ¿POR QUÉ LOS BEBES LLORAN? Hambre es la razón más común porque los niños lloran, definitivamente no es la única razón. Usualmente, si un recién nacido se le ha dado leche y ha eructado dentro de una hora y media, la casualidad es que ella (él) necesitan algo más. Quizás ella (él) necesita que lo tome en sus brazos, puede ser que tenga frío o quizás necesita recordarle que usted está presente para él o ella. Usted puede pensar que como padre de alguna manera supuestamente debe conocer mágicamente cada llanto de su bebé. Así no es. Ningún padre puede. Por lo menos al principio. Tanto usted como su bebé, se van conociendo uno al otro: usted comprenderá sus antojos y sus llantos. Expertos en el desarrollo del niño están de acuerdo en: usted no puede mimar a su recién nacido por solo responder a sus llantos. Habrá momentos que usted sienta que su bebé la está tratando de controlar con su llanto. Sin embargo, científicos ahora saben que no es hasta más tarde en el primer año de vida cuando el bebé aprende que ellos tienen el poder para obtener la conducta en usted en ciertas formas. Para bebés de seis meses o menores, su respuesta es rápida y amorosa- tanto como la comida – es un consuelo para él o ella si es que esta molesta. ¿QUÉ TANTO LLORAN LOS BEBÉ? Mientras todos los bebés lloran, la cantidad de llanto depende de cada bebé. Es común para los bebés llorar un promedio total de una hora al día durante las primeras semanas de nacido. Esto puede aumentar tanto como dos horas total al día cuando el bebé tiene seis semanas. Después de los ocho semanas, la cantidad puede bajar otra vez a una hora total al día. Si tu bebé llora más del promedio, él o ella podrían tener cólicos. Por supuesto, cinco minutos de llanto se pueden sentir como una hora si usted solamente tiene un par de horas que ha dormido! Debe monitorizar cuanto su bebé llora en un diario. Esta puede ser menos de lo que parece. Comparta esta información, la cantidad total de sueño y llanto con el proveedor de salud de su bebé. Trazando cuanto su bebé llora puede ser de gran ayuda si usted piensa que su bebé sufre de cólico. ACURRUCAR Acurrucar es otra palabra para envolver ómodamente a su bebé- como si fuera un burrito! Mientras esto sea extraño para ustedes, a los bebés les gusta estar arropados de esta forma, les es difícil mover los brazos y los pies. Cuando ellos están en su vientre, ellos no tienen mucho espacio para moverse. Así que ellos envueltos se sienten como en su casa. Así es como usted debe arropar a su bebé: 1. Extienda una cobija grande en una superficie plana (cobijas que se pueden estirar son buenas para envolver a su bebé). 2. Halar la esquina de arriba de la cobija para hacer un triángulo. 3. Acomoda el bebé que su cabeza este sobre la parte doblada de la cobija. 4. Coloca su brazo al lado de su cuerpo y dobla la cobija sobre su cuerpo hasta cubrir su pecho. 5. Inserta la parte restante de la cobija detrás de su espalda entre su torso y la otra mano. 6. Toma la parte triangular de la parte de debajo de la cobija y tráela hasta el pecho del bebé. 7. Halar la parte restante de la cobija y cómodamente cubre el pecho del bebé ubriendo su otro brazo y arropa la cobija detrás de él o ella tan lejos como pueda. Este artículo fue tomado del folleto Todos los Niños Lloran. Para ver una copia gratis de este folleto, incluyendo una hoja de Diario de Llanto, Consejos de Cuidado por sí mismo, y Como enfrentarse a las visitas. www.allbabiescry.com 3 Family Circle Spring/Summer 2016 Sponsored by the Early Start Family Resouce Network IEP Overview Learn the basics of this important planning meeting which first occurs around your child’s 3 rd birthday and involves his/her educational needs. Topics to be discussed: What is an IEP Meeting and why do we have them? What can be included in an IEP? Who is on the IEP Team? What is the parent’s role? What are your rights? How to keep good records How to prepare for an IEP Meeting Tuesday, April 26, 2016 Tuesday, July 26, 2016 10:00 am – 12:00 pm There are two options for attending this free workshop: In person at: Molina Healthcare Information Center Inland Center Mall San Bernardino, CA Conference Call: To join this workshop live, you will be provided with a special toll-free number to call and handouts will be sent to you before the workshop. Reservations are required one week in advance! For more information or to register please call the ESFRN at (800) 974-5553 or email info@esfrn.org. Patrocinada por el Programa Empezando Temprano y el Centro de Recursos para la familia (ESFRN) Información del IEP (Programa Educativo Individualizado) Aprenda la información importante y básica de como planear esta junta que ocurre alrededor de los tres años y que concierne las necesidades educativas de su hijo/a. Tópicos a discutirse: ¿Qué es la junta del IEP y por qué tenemos esa junta? ¿Qué debe ser incluido en la junta? ¿Quién debe estar en el equipo del IEP? ¿Cuál es el rol de los padres? ¿Cuáles son sus derechos? Como mantener buenos registros Como prepararse para la junta del IEP Miércoles, Abril 27, 2016 Miercoles, Julio 27, 2016 10:00 am – 12:00 pm Tenemos 2 opciones para atender este taller gratis: Este taller se llevará a cabo en: Molina Healthcare Information Center Inland Center Mall, San Bernardino, CA Llamadas de conferencia: Este taller estará disponible a través de su teléfono. Usted se le proveerá un número especial libre de cargos para llamar y folletos serán enviados a usted antes del taller. Reservaciones son requeridas para la llamada de conferencia! Por favor llame al (800) 974-5553. 4 Family Circle Spring/Summer 2016 Dr. Bill Telephone Education Series For families of young children with visual impairment and their early intervention/ education team Dr. Bill Takeshita, Chief of Optometric Services and Coordinator of Children’s Programs for the Center for the Partially Sighted, as well as Director of Low Vision Training for Braille Institute, is partnering with Braille Institute Child Development Services for this informative monthly Telephone Education Series. Each tele-conference offers a 30-45 minute lecture and a question and answer period following the lecture. Please join us for the following dates and topics. . April 12th 2016 Retinal Detachment and hemorrhages: May 10th 2016 Head tilt, head turns, and toe walking: Are these indicators of a vision problem? June 14th 2016 Dr. Bill discusses encouraging children with vision impairment to be their best special guest, Dr. Thomas Lee, Director of the Retinal Center and Division Chief, The Vision Center, CHLA special guest: Nancy Dilger, Pediatric Physical Therapist, Footprints Pediatric Therapy All tele-seminars will be held on the 2nd Tuesday of the month from 7:30-8:30 PM PST, unless a change in time/date is announced. There is no need to register. To join the call, please dial: 1 888 247-8947. When the operator prompts, dial the pass code: 460500. Once you have entered the call, you will be asked to press *6 to mute your line to ensure the quality of the recording. The lecture portion of the call is available as a podcast after the call on the Airs-LA and BrailleInstitute websites: To access the podcasts please visit: www.airsla.org www.brailleinstitute.org (www.brailleinstitute.org/audio/index.php/home/telephone-education-series). The Dr. Bill Telephone series is an educational program focusing on pediatric eye conditions for parents, teachers and other professionals working with young children with visual impairment(s). The topics presented should not be considered a medical or educational consultation, but information to help us better understand pediatric eye conditions. 5 Family Circle Spring/Summer 2016 Upcoming Events For a complete list of upcoming events, please visit our website calendar at www.esfrn.org. 4/23/16- City of Temecula Special Games – This event will be open to athletes of all ages with developmental disabilities. Athletes will be participating in opening ceremonies and non-competitive games. Sponsored lunch and closing ceremonies. Event time 9:30am – Great Oak High School Football Stadium. Deadline to register is 4/15/16. Contact Dawn Adamiak at (951) 240-4268 or email at dawn.adamiak@cityoftemecula.org. 4/30/16- Inland Empire Latino Book & Family Festival - The Inland Empire Latino Book and Family Festival takes place Saturday, April 30 from 10 a.m. to 5 p.m. at Cal State San Bernardino’s Santos Manuel Student Union. The festival is open to the public and admission and parking are free. The event will feature education, entertainment, culture, food, exhibits, storytelling, workshops and a chance to meet authors. For more information on the event call (909) 537-5102 or visit Facebook at www.facebook.com/IELBFF. 5/2/16 – Siblings Supporting Siblings - Typical children who are raised with a sibling who has a disability face unique challenges and may experience emotions and situations that are difficult to express. This interactive group will help brothers and sisters deal with these feelings in a fun and healthy way. This group meets from 6:00-8:00 pm at The Rock Church, 2345 S. Waterman Ave., San Bernardino. There are parent support groups available at the same time. For more information call Regina at (909) 890-4780 or join the Facebook group www.facebook.com/groups/SiblingsSupportingSiblings/. 5/7/16- Cinco de Mayo Celebration - The City of Rancho Cucamonga and Northtown Housing Corporation will host a Cinco de Mayo celebration from 1 to 6 p.m. at Old Town Park located at 10033 Feron Boulevard. Enjoy live entertainment, food, pony rides and more. Call (909) 980-0465 for more information. 5/21/16- Walk & Ride For Brain Injury - The event includes food, music, entertainment, kids games, bake sale, raffle. Exhibitors will provide information and local resources. Walk Distance is 1 Mile. Service dogs only. Pioneer Village 3801 Chester Ave., Bakersfield. Register at www.biacal.org. 6/3/16- Operation Splash - Join us for our annual water safety event in San Bernardino featuring a Play Zone, Community Resource Fair, Entertainment and TWO Free Swim Sessions presented by Kaiser Permanente and the City of San Bernardino. Two Swim Sessions: Noon-2:30PM & 3:00PM-5:00PM. Admission First Come, First Served (Space is Limited!) Jerry Lewis Swim Center at Perris Hill Park 831 E. Highland Avenue, San Bernardino, CA 92408. 6/4/16- Montclair’s County Fair Jamboree – Come join us for a day of Family Fun, Sack Races, Pie Eating contest, Games, Rides, Food & Entertainment. Alma Hofman Park 5201 Benito St. For more information call (909) 625-9479. 6/11/16 & 6/12/16- Special Olympics Summer Games - Witness the human spirit on full display at the 2016 Summer Games at California State University, Long Beach. Summer Games attracts more than 1,100 athletes from across Southern California who will compete for gold, silver, and bronze medals and ribbons. The Games features our six summer sports — aquatics, athletics (track & field), basketball, bocce, golf, and gymnastics. For more information visit www.sosc.org/summergames. www.facebook.com/EarlyStartFRN This newsletter attempts to report items of interest relating to special needs. We will not knowingly reproduce inaccurate material. We do not promote or recommend any treatment, therapy, institution or professional. The inclusion of any resource, including web sites, in the ESFRN newsletter does not imply endorsement. Inland Regional Center (IRC) is the contractor for this project which is funded under contract number 149008 with the Early Start Program, through the State Department of Developmental Services.